<code id='39BFEBB3ED'></code><style id='39BFEBB3ED'></style>
    • <acronym id='39BFEBB3ED'></acronym>
      <center id='39BFEBB3ED'><center id='39BFEBB3ED'><tfoot id='39BFEBB3ED'></tfoot></center><abbr id='39BFEBB3ED'><dir id='39BFEBB3ED'><tfoot id='39BFEBB3ED'></tfoot><noframes id='39BFEBB3ED'>

    • <optgroup id='39BFEBB3ED'><strike id='39BFEBB3ED'><sup id='39BFEBB3ED'></sup></strike><code id='39BFEBB3ED'></code></optgroup>
        1. <b id='39BFEBB3ED'><label id='39BFEBB3ED'><select id='39BFEBB3ED'><dt id='39BFEBB3ED'><span id='39BFEBB3ED'></span></dt></select></label></b><u id='39BFEBB3ED'></u>
          <i id='39BFEBB3ED'><strike id='39BFEBB3ED'><tt id='39BFEBB3ED'><pre id='39BFEBB3ED'></pre></tt></strike></i>

          leisure time

          leisure time

          author:explore    Page View:1
          Photo illustration of three children against a blue background. -- health coverage from STAT
          The Pashai children (from left): Abubakar, Mohammad, and Sufyan. Illustration: STAT; Photo Courtesy

          On a sweltering day in August 2021, as the engines of a hulking C-17 cargo plane drowned out pops of gunfire and Taliban rocket explosions around them, the young Afghan couple looked down at their 4-month-old son, Mohammad, and felt a shuddering wave of relief. But as the plane lifted above the dusty peaks that hug Kabul like a fortress of sandstone and schist, that feeling grew heavy with grief — for the parents and siblings they were leaving behind, and for Afghanistan, the only home they’d ever known. They did not know when, if ever, they would set foot there again.

          Three years later, the Pashais are fearing for their family’s lives once again. This time the existential threat they face isn’t war, but a pair of faulty genes, silently passed down through their families for generations before detonating on American soil.

          advertisement

          In October, Mohammad was diagnosed with a rare inherited disorder — metachromatic leukodystrophy. Genetic tests revealed his youngest brother, Sufyan, though he’s showing no symptoms, also has the disease. There’s a potential cure for Sufyan, a company offering it free of charge, and a team of doctors in Minnesota ready to administer it. But the Medicaid program in the Pashais’ new home state of Texas has said it won’t cover the cost of even an initial consult to confirm he’s a good candidate for the treatment.

          Get unlimited access to award-winning journalism and exclusive events.

          Subscribe Log In

          explore

          Jerome Adams on the need for new antivirals for Covid
          Jerome Adams on the need for new antivirals for Covid

          PaxlovidtabletsamplesbeinginspectedinFreiburg,Germany.PfizerviaAPTheU.S.Covid-19Public HealthEmergen

          read more
          J&J to emphasize cancer drugs, stop much of its vaccine research
          J&J to emphasize cancer drugs, stop much of its vaccine research

          DanielHulshizer/APEightmonthsintohistenure,Johnson&Johnson’sR&Dchiefisputtingabigemphasisonm

          read more
          State Dept. review finds Biden bears some blame for Afghanistan failures
          State Dept. review finds Biden bears some blame for Afghanistan failures

          3:53HundredsofpeoplegathernearaU.S.AirForceC-17transportplaneattheperimeteroftheinternationalairport

          read more

          Will the market for weight loss drugs really reach $100 billion?

          DamianGardeofSTAT,left,talkedwithLiisaBaykoofEvercoreISIandJaredHolzofMizuhoabouttheGLP-1weightlossm